Who is the patient? Remember to talk to us, not just our parents, carers or other adults in the room and then to involve us in checking, changing and championing services.
Don’t miss opportunities to find out what we think, to involve us in decisions and to reduce the amount of times we have to repeat our story.
We want to be part of the conversation to decide who has to know, who needs know and who we want to know.
Think about where we are talking - is it child and youth friendly, does it feel calm and somewhere I can take an active part?
We need to know and feel that you have listened, heard and acted on what we have said. This includes when I see you about my care and when I’m involved in groups.
Let me know who can help me locally and how I can get involved to help by sharing my ideas and to make a difference.
Transitions happen in lots of different places – between services, between ages, between clinics. We want to work together with the decision makers and be part making changes.
Attitude is important – a smile costs nothing!
Find out what matters to me – this could be about my health, my job hopes, my idea for your hospital or my questions about my condition. When you know these then we will both do better.
Decisions need to involve me that affect me (UNCRC Article 12) We need you to think about how we can help you to make the best service and the best lives possible for children and young people.