Use this stakeholder toolkit to encourage more people to feedback on their care.
Focusing on people with learning disabilities and autistic people
On Thursday 4 March, we launch the latest part of our public campaign - encouraging people to give feedback on their experiences, good or bad. Over the next few weeks we particularly focus on those with learning disabilities and autistic people.
Our research shows people with a learning disability and autistic people are more reluctant to give negative feedback on their care in case it increases pressures on staff or services. This is why CQC is calling on people with a learning disability and autistic people, and their loved ones, friends and carers to give feedback on their care..
CQC has made improving care for people with a learning disability and autistic people a priority, which is why Debbie Ivanova, the Deputy Chief Inspector of Adult Social Care is leading a new programme of work to transform the way they regulate services for people with a learning disability and autistic people.
- Debbie Ivanova, CQC says: “Listening to the lived experience of people with a learning disability and/or autistic people has to be at the centre of how we decide to regulate and improve care. It is so important to hear their voices and allow our approach to be shaped by this in order to properly address the challenges of closed cultures and inadequate care."
- Tom Purser, Head of Campaigns at the National Autistic Society says: “The CQC’s Out of Sight report last year found many shocking examples of undignified care. And our own research suggests two in three autistic adults don’t get the support they need. The care system needs urgent and properly funded reform. This must be informed by autistic people and their families’ experiences of health and social care services. We encourage people to share their feedback, good or bad, with the CQC.”.
Year-long campaign overview
Because We All Care is a year-long campaign led by the Care Quality Commission (CQC) and Healthwatch England in response to coronavirus (COVID-19). As the country pulls together to recover from the impact of coronavirus, Because We All Care aims to encourage more people to share their experiences of care to help the NHS and social care services identify and address quality issues and provide the best care possible.
If you work for a health or social care service or support patients and service users, join the campaign to help spread the word and help more people to have their say on health and social care! The campaign is supported by CQC and Healthwatch but anyone can take part, whether you run a social care or NHS service, work for a charity or just want to encourage more people to share their experiences of care.
Our research indicates that people support health and care services more than ever and want to do more to support them in the aftermath of the coronavirus crisis. This year-long campaign aims to harness this by supporting more people to have their say. We want to promote the positive benefits of sharing feedback on care - either with providers directly or third-parties such as CQC and Healthwatch - and how that can help services to provide the best possible level of care. Over the long-term, the campaign aims to help create an environment where sharing feedback on care becomes the norm.
How can you get involved?
We've produced a range of resources to help you get involved in the campaign, sharing content throughout 2020 and early 2021 to keep up the campaign’s momentum. You can also use the campaign yourself to get feedback from those you support.
The campaign will be promoted through a combination of traditional and social media activity to reach as many people as possible. You can help to support this by sharing the posts and materials to encourage feedback for your organisation, by:
- Sharing campaign messaging and assets on social media (outlined in this toolkit)
- Retweeting or resharing content from CQC, Healthwatch and other partners social channels
You can also adopt the campaign in your own work, to increase the level of feedback you receive for your service directly:
- Contributing case study stories
- Supporting the campaign on your website (e.g. campaign landing page or blogs)
- Using campaign templates to develop your own content
- Highlighting the campaign in other communications (e.g. newsletters)
- Referencing or supporting the campaign through owned press activity
- Putting up posters about the campaign in local service locations (e.g. waiting rooms).