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Living With CF Stories of history in the making

Until recently, Cystic Fibrosis was an early death sentence. Now people are living longer, healthier lives with CF. And soon, stories of this crippling disease -- double-lung transplants, hours of nebulizer treatments, weeks-on-end in the hospital, a future out of reach -- will be just that:

Stories.

Vertex Pharmaceuticals is the fulcrum of this great pivot.

With Vertex’s three current groundbreaking medicines and extensive pipeline that target the underlying cause of the disease, soon up to 90% of CF patients will be able to medically manage their disease. The remaining 10% will need something bigger, bolder, and even more elusive: gene editing. But this too is coming.

In the near future, Cystic Fibrosis will effectively be history.

Which is why it's essential that we capture the stories of individuals and families grappling with this disease today. And that we preserve the stories and memories of those who were lost to CF to light the way toward innovation, toward discovery, toward hope.

The Living With CF project will document, in video, pictures and words, this monumental moment in medicine as Cystic Fibrosis transforms from an early death sentence to a medically-managed condition.

Left to right, top to bottom: Lindsey Shipp, Lauren Bombardier Weeks, Emily Kramer Golinkoff, Gunnar Esiason, Emily Schaller, Carson McKee, Fallon Finegan, Kat Finegan, Grace O'Leary, Sean Young, Austin Gordon, Molly and Emily Bonnell, Margarete Cassalina

The stories of people with CF and their families. Stories of loss and hope.

Their stories.

Lindsey Shipp

Lauren Bombardier Weeks

Emily Kramer Golinkoff

Gunnar Esiason

Emily Schaller

Carson McKee

The Finegan family

Grace O'Leary

Sean Young

Austin Gordon

Molly and Emily Bonnell

The Cassalina family

This fall, Anthem Multimedia proposes to travel to four regions of the United States to capture 12 patient and family stories that speak to the scope and significance of CF Stories.

We propose two subjects each for 6 categories:

  1. Kalydeco Patients - Emily Schaller & Lindsey Shipp
  2. Orkambi patients - Sean Young & Carson McKee
  3. Symdeko patients - Lauren Bombardier Weeks & Grace O'Leary
  4. Next-Gen - Gunnar Esiason & Molly and Emily Bonnell
  5. Nonsense - Emily Kramer Golinkoff & Austin Gordon
  6. Those who have lost loved ones to CF - Diane Finegan & Margarete Cassalina

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Out of this multimedia tour, we will generate:

31 individual videos,

Stylized portraits,

A documentary-style photo library,

First-person-style written narratives from each subject family along with a written piece that locates this moment in the sweep of medical history,

&

Foundational assets for a full-length documentary about the End of Cystic Fibrosis.

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Areas of Inquiry During Interviews

  1. Daily Life and Introductions
  2. Medical Story
  3. Shifts and Progress in Treatment
  4. Sweep of History
  5. Looking Forward
  6. Unique Perspective
  7. Gratitude, Sorrow, Loss, Fear, and Hope
  8. Vertex, Researchers, Science, and Drug Development
  9. The CF Story
Sample production schedule if pre-production began August 9

We propose 4 filming tours: New England, the Northeast Corridor, the Midwest, and San Diego.

Pre-production phase before filming will range from 2-4 weeks, depending on subject schedules and project needs. Assets will be edited concurrent with filming and delivered on a rolling basis.

Project timeline is four-to-five months from first filming through delivery

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The Team

Director + Producer, Dina Rudick

Dina Rudick has won 4 Emmy Awards for her video and documentary work, as well as dozens of national photography awards during her decades-long career as a photojournalist and documentary filmmaker. A skilled communicator and effective team leader, Dina excels at guiding her team of creative experts toward a common vision. Dina’s approach is grounded in journalism ethics and aesthetics, though her creative scope invites use of animation and motion graphics if and when they serve the concept. Dina has done extensive documentary work around the globe, including in Kenya, Pakistan, Bolivia, and Haiti. Dina taught photography and video for years at Boston University College of Communication and Harvard University Extension, and has lectured widely at institutions in the United States.

Cinematographer, Dylan Trivette

As a cinematographer, Dylan Trivette has garnered accolades for filming a wide range of projects that span issues such as Palliative Care in Zambia, Yoga in the slums of Kenya, and ultra-marathon running in the canyons of Mexico. When not traveling on assignment for documentary and corporate projects, Dylan films EPK (electronic press kits) and behind-the-scenes featurettes for Hollywood film studios. In addition for his love for film and video, Dylan also has a passion for photography, music, and the natural world. Dylan graduated from the North Carolina School of the Arts with a degree in Filmmaking and a Concentration in Producing.

Audio Engineer, Adam Johnson

Adam Johnson is a Grammy-nominated audio engineer and producer. His music credits include work with some of the biggest artists and companies around the world including the Boston Symphony Orchestra, the Boston Pops, Yo-Yo Ma, Bela Fleck, James Taylor, Edgar Meyer, Alison Kraus, Harry Connick Jr., Audra McDonald, The Emerson String Quartet, Itzhak Perlman, Andre Previn, and Maya Angelou to name a few. He also worked on the Grammy award-winning album “Legacy” with David Holt and Doc Watson. Expanding on his music background and education, Adam also works as a production sound mixer and post-sound engineer for commercials, TV productions, documentaries and feature-length films. Adam holds degrees in music production as well as computer science. He is also a member of the Audio Engineering Society, the National Academy of Recording Arts & Sciences, and the Society of Broadcast Engineers. He currently is the head-engineer and co-owner of Sound Lab Studios based out of Asheville, North Carolina.

Photojournalist, Erik Jacobs

Erik Jacobs is an award-winning photographer who works regularly for many of the leading national and international publications. Erik’s clients span all industries from journalistic outlets to international corporations. He has extensive experience in portraiture, food, editorial work and corporate photography. His passion, however, is long-term documentary projects. A sampling of Erik's photography clients includes: Intel, General Motors, Putnam Investments, The International Economic Alliance, Outward Bound, Time Magazine, Newsweek Magazine, The New York Times, The Wall Street Journal, The International Herald Tribune and The Boston Globe. He has won numerous awards and is an adjunct faculty member at Boston University's Center for Digital Imaging Arts. Erik Jacobs studied Photojournalism at Western Kentucky’s School of Journalism & Broadcasting.

Author, Keith O'Brien

Keith O'Brien has written two books, been a finalist for the PEN/ESPN Award for Literary Sportswriting, and contributed to National Public Radio for more than a decade. The New York Times Book Review has hailed him for his “keen reportorial eye” and “lyrical” writing style.O’Brien’s radio stories have appeared on NPR’s All Things Considered, Morning Edition, and Weekend Edition, as well as Marketplace, Here & Now, Only a Game, and This American Life. He has also written for The New York Times, The New York Times Magazine, The Washington Post, USA Today, Politico, Slate, Esquire.com, and the Oxford American, among others. He is a former staff writer for both the Boston Globe and the New Orleans Times-Picayune. As a newspaper reporter, he won multiple awards, including the Casey Medal for Meritorious Journalism. He was born in Cincinnati and graduated from Northwestern University.

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Work Comps

Documentary storytelling about complicated human matters is our biggest strength. Our combined expertise and experience in documentary storytelling, cinematic narratives, and photojournalism make us the ideal team for this project. Two of our recent projects involve dramatizing and communicating complicated medical stories and took the form of cinematic short-form documentary. They are linked-to below:

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Anthem Multimedia
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