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OCRA Advocate Leaders Social Media Guide Representing the Ovarian Cancer Community on Capitol Hill

Social media platforms are public, accessible, and effective channels to engage with elected officials at all levels of government. Data shows that roughly half of all members of congress directly engage with their constituents on social media, especially when it pertains to policy issues. Utilizing your voice on social media as an Advocate Leader will help bring attention to OCRA’s position and help propel their efforts. The smallest movement can seem much larger when a core group of people post about the same topic, use the same designated hashtag, and highlight a unified message.

Below, we have compiled tips, resources, and sample posts for your use before, during, and after OCRA’s Spring Advocacy Day.

Make sure to follow @OCRA on Facebook, Twitter, and Instagram and join OCRA in advocating for research, funding, and support for finding a cure for ovarian cancer.

Social Media Tips

How to Make Your Voice Heard!

  • Tag @ocrahope and use #TealAction in your social media posts. Before, during, and after Advocacy Day, it is important to tag @ocrahope in your social media posts and use the designated hashtag #TealAction. This will give other social media users an opportunity to view the OCRA profile, learn about OCRA’s mission, and follow our Advocacy Day activities. The hashtag is also crucial in allowing other users to see your fellow advocates’ posts using the same hashtag.
  • Make your Facebook posts public. For your advocacy posts, you can change your privacy settings to Public to add to the broader conversation and allow anyone on Facebook to view your post. See the image below for where to update your settings. The next time you make a personal post, just remember to change your privacy settings back to Friends Only, or whatever you were using before.
  • “Like,” “follow,” and “tag” your representatives on social media. To find your representatives’ social media usernames, use OCRA’s elected official House and Senate search tool. Always use the @ symbol and then type the username when tagging someone in your posts. When you tag your representative, their office is more likely to see the post and respond. Remember, when engaging with legislators online, always be respectful and tag them accurately in your posts. Your interactions are visible to other constituents and may spark a dialogue about the issue you are raising.
  • Take pictures and post them to your social media channels. During Advocacy Day, feel free to ask your representatives whether they would take pictures with you, before or after your Congressional visits with them. Pictures generally attract more engagement with posts. Try to get group pictures too. When uploading a picture to your social media channels, be sure to tag the office and/or the individual in the picture.
  • Encourage your followers to engage with @ocrahope and #TealAction on social media. An easy way to amplify the message is by encouraging your followers to share the hashtag #TealAction, follow @ocrahope, and join you in reaching out to your legislator. A direct message to close friends, family, and fellow survivors can be an impactful tactic in motivating them to join you.
  • Utilize social media’s video capabilities before, during, and after Advocacy Day. During your travel to and from Washington, D.C., and between programs and visits, use video to record a message to your followers and legislators about what you learned, what you hope to see, why you’re in D.C. etc. Instagram, Instagram stories, Facebook Live and Twitter are generally platforms that are more video-friendly, and you can also upload finished videos to Facebook. Be sure to tag your representatives in the posts.

About OCRA

We encourage the use of key OCRA messaging in social media posts as you discuss OCRA.

  • Ovarian Cancer Research Alliance (OCRA) is the world’s largest ovarian cancer research, advocacy, and patient support organization.
  • OCRA is the largest non-government funder of ovarian cancer research.
  • Since 1998, OCRA has awarded over $100 million and counting to scientists to invest in improved treatments, preventive measures, and a cure.
  • OCRA’s investments have advanced our understanding of ovarian cancer, how it starts, and new treatment options.
  • OCRA fights on Capitol Hill for more federal funding for ovarian cancer research and to make sure that ovarian cancer is a priority for policymakers.

Ovarian Cancer Statistics

Statistics demonstrate the impact that ovarian cancer has had on women in the US, and emphasize the importance of funding for ovarian cancer research to find treatment options, preventive measures, and a cure.

  • It is estimated that more than 22,000 people will be newly diagnosed with ovarian cancer each year.
  • It is estimated that more than 14,000 people will die from ovarian cancer each year.
  • Ovarian cancer ranks fifth in cancer deaths among women, accounting for more deaths than any other gynecologic cancer.
  • About 200,000 people in the U.S. are currently living with ovarian cancer.
  • A women’s risk of getting ovarian cancer during her lifetime is about 1 in 78.

OCRA Resources

In addition to always tagging @ocrahope and use #TealAction in your social media posts, feel free to share these links directly on your social media channels.

Sample Posts

Below you will find sample posts for Facebook and Twitter. Facebook posts are allowed to be as long as you want, although we recommend keeping them concise. Twitter posts are limited to 280 characters. Of note, it is common practice to post more frequently on Twitter than on Facebook. To make your post stand out, we recommend always including a photo.

Facebook

  • Today is @ocrahope Virtual Advocacy Day! I'm taking #TealAction and meeting with @XcongressMember to tell my story, and talk about why ovarian cancer research funding is crucial. Thanks, OCRA. OCRAHOPE.org.
  • Every 23 minutes another person is diagnosed with ovarian cancer. I’m taking #TealAction with @ocrahope to advocate for funding and support from congress for ovarian cancer research. I just spoke virtually with @XSenator & she was so supportive. Please share this post and show @Xsenator how much we appreciate her dedication.

Twitter

  • Looking forward to advocating for #TealAction with @ocrahope. Going to show @XCongressMember how important it is to support and fund #ovariancancer research.
  • Just talked to @XRepresentative & she was so supportive of @ocrahope #TealAction for #ovariancancer research. [Attach Image]

Thank you for using your voice!

Together we are making a difference!