Jarell the Fighter Diagnosed with Spinal Muscular Atrophy Type Iii & Severe syndomic scoliosis

A few months ago, Jarell started having difficult breathing and with this, he was scheduled to have surgery on his spine to further avoid puncturing his lungs and heart. He was admitted on March 8, 2017 at The Medical City Hospital to undergo all the tests recommended by surgeons. Unfortunately, when he was admitted to the hospital conditioning his body for surgery, the doctors decided to support him with oxygen. However, the oxygen did him more damage than good as he fell into coma for 12 hours. He had to use a mechanical ventilator to breathe. In addition, the doctors had to cancel his spine surgery as his body was not in the right condition. Therefore, Jarell had to undergo Tracheostomy to help him breathe and Percutaneous Endoscopic Gastronomy that helps him intake food.

As we share his story now, Jarell is still in the Intensive Care Unit for observation until all his vital signs are stable.

Through all this medical procedures, the physical pain and setbacks, Jarell remained positive. He continues to fight, putting a brave face with his spirit remaining strong.

Jarell and his family needs your help, as his family will bring him home after his confinement. Your help will finance his maintenance such as oxygen, hospital bills and his therapy. His estimated hospital bills now reached almost 3 million pesos including the doctors fee. His fees are still growing as he is still admitted.

To raise money, Jarell and his family hosted events such as Zumba and Bazaar. The Bazaar was held at St. Raphaela Mary School at GSIS Hills Subdivision, Caloocan City on April 21-23. The Bazaar focused onto selling brand new and used clothes donated from various people. It conducted for 2-3 days in which became successful as the team (friends) raised up to 7k. There were also food and drinks to accomodate people passing by.

Beautiful clothes from loving people!

On the other hand, Zumba was held on April 23 at Caviha Court, Cadaing Village Quezon City. It started from 4pm to 9pm with up to 100 guests. The event came with the assistance of Zin Team a group of Zumba instructors, they participated as coaches. In addition, the event was also accomodated with the Bazaar where friends sold drinks, food and clothes.

There will also be more events coming up such as: Travel for a Cause with the help of Aldoa Travel & Tours and #EJLakwatsera. The destination will be Calaguas on May 6-7 & 13-14 aiming to raise fund from event.

For those who have already helped, you have our sincerest gratitude.

This is your time to help someone; someone who is young and someone who wants to live. Let’s give Jarell a hope and an opportunity to experience further stages in life.

“In all things I have shown you that by working hard in this way we must help the weak and remember the words Lord Jesus, how he himself said, ‘It is more blessed to give than receive.’” Acts 20:35

Please do not forget to like and share, this is already a huge help.

Fight with Jarell! 👊🏻

For more info about Jarell Rustia and his diagnosis, check: Jarellthefighter

To book Calaguas, contact EJ Espeña: 09354221283

Created By
Ayuri Wasaki
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