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#hdisfordancing A dance initiative to support the Huntington disease community

What is #hdisfordancing?

#hdisfordancing is an initiative to bring awareness to Huntington Disease through dance. Four years ago, a member of my family was diagnosed with Huntington Disease. It's a devastating and life-changing neurodegenerative disease, like having Alzheimers and Parkinson's simultaneously. It's a disease that impacts body and mind. There is currently no cure for HD, though a lot of very promising research is being done. The ongoing events run by #hdisfordancing benefit The Huntington Society of Canada (HSC) and the Huntington Disease Youth Organization (HDYO).

How can I help right now?

HDYO's World Congress was originally to be held in Glasgow in 2020. Pivoting for COVID-19, it was sent online over a weekend in March of 2021. I was honored to facilitate 25min of dance programming for attendees. Thanks Matt at HDYO for seeing the value in adding dance to the weekend!

Check out the 2021 HDYO Virtual World Congress Dance Class

We also made this next video! SHARE it to help spread awareness.

WORLD-WIDE Flash Mob For Huntington Disease Awareness

THANK YOU to all who made this video come to life! Please continue to share it with friends and family to help spread the word. The goal is to reach 5,000 views.

PAST EVENTS

  • May 2020 | Facebook Fundraiser raised $701 for the Huntington Disease Youth Organization.
  • March 2021 | Dance Class for the HDYO World Congress
  • January 2020 | Gift Card Raffle to support #hdisfordancing attendance at the HDYO World Congress POSTPONED due to COVID-19.
  • September 2019 | BC Walk to Cure Huntington Disease. Team #hdisfordancing raised $2180.00 in support of the HSC. Thank you to Harbour Dance Centre for the $100.00 Gift Card donation to the Silent Auction.
  • December 2018 | Public Dance Class: Restorative Stretch @ Harbour Dance in Vancouver, Raised $65.00 for The Huntington Society of Canada
  • October 2018 | HD Youth Organization Dance Videos for #ChallengeWeek for HD awareness. Raised $462.00 for The Huntington Disease Youth Organization through a Facebook Fundraiser
  • September 2018 | BC Walk to Cure Huntington Disease. Team #hdisfordancing raised over $500.00 in support of The HSC.
  • November 2017 | Public Dance Class: Imagery for Ballet Technique @ Harbour Dance in Vancouver. Raised $725.00 for The Huntington Society of Canada
  • October 2017 | HD Youth Organization Dance Videos for #ChallengeWeek for HD awareness
  • September 2016 | Public Class Series & Silent Auction: Dancing for Huntington Disease. Raised over $1400.00 for The Huntington Society of Canada

How else can I get involved?

A major part of this initiative is to raise awareness, so sharing information is almost as good as making a donation. You can post this webpage to social media using #hdisfordancing to help raise awareness about Huntington Disease.

Check out The Huntington Society of Canada and the HDYO where you can learn more about HD and how you can get involved. You can also donate to the HSC or HDYO directly and receive a tax receipt.

Be sure to select 'Other' from the 'Designation' drop-down menu and type in #hdisfordancing

Credits:

Created with images by Sponchia - "feather ease slightly" • Sponchia - "feather ease slightly" • Sponchia - "feather ease slightly" • Sponchia - "feather ease slightly"