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A Year in Review The ALS Association Connecticut Chapter 2019/2020

MEET THE TEAM

FINANCIAL SUMMARY

IMPACT

In 2019, The ALS Association Connecticut Chapter provided care, support, and resources to over 400 families affected by ALS.

SUPPORT GROUPS

Facilitated 73 support groups for people living with ALS, family caregivers, and loved ones

This was such a valuable experience … listening to others stories, as painful as it may have been, gave me huge a ‘has—I am not alone, the way I’m feeling is “normal” for what is happening--- and in all of the anguish, there is much to still be lived and hoped for. So I want to let you know that I’m very grateful …you did such a fine job listening and responding to us all. I came away with some relief, a few laughs for sure, and a feeling of grief being lifted a bit just by coming together and sharing. People were so open and honest – it encouraged me to step back and just take a breath and remember we are not defined by this disease.

EQUIPMENT

Promoted safety, independence, and dignity by delivering over 415 pieces of Durable Medical Equipment to 135 families.

We were so very blessed in the support of The Connecticut Chapter of ALS specifically you and your staff members. Having that support truly enabled us in going forward and as each challenge came about you were there to assist with equipment from your loan closest

TRANSPORTATION

Provided 361 accessible rides to go to clinic visits, medical appointments, weddings, family reunions, dinner, and more!

Families traveled 8,027 miles, or the distance from Milford to LA 3 TIMES!

Just want to thank you for the use of the van we had a nice day with good food and Jane enjoyed her visit. This is the first time she has been out of the house in almost a year…

CLINIC SUPPORT

Provided $70,000 to ALS Certified Centers and Clinics

We are hanging in there with the help of the ALS team. You all are doing an awesome job of helping people with ALS. I feel so blessed to have all the support, supplies and equipment to assist me.

HOME VISITS

Care Managers visited 132 homes providing support, care, and resources

We, my family and I, want to thank you personally for being there for Dad and for us…Thank you for your patience, your time, your concern and your love.

CARE ASSIST GRANTS

49 families received financial grants to assist in paying for respite care, home modifications, and other extraordinary costs related to ALS

Thank you so much…it allowed us to have my husband’s wheelchair to be repaired. He has just enough strength in his fingers to operate the controls. He can adjust his position.

ADVOCACY

Met with Connecticut Representatives and Senators in Washington DC to advocate for all families living with ALS.

THE ALS ASSOCIATION ADVOCACY PROGRAM ▸

When you witness an organization that works tirelessly to help those that are challenged by ALS in action it restores your faith in humanity.

RESEARCH

Supported over 150 laboratories around the world in search for treatments and a cure.

THE ALS ASSOCIATION RESEARCH PROGRAM▸

Thank you so much! I can’t begin to express how much this help means to us. As you know the costs are overwhelming. You have been a joy to work with.

WALK TO DEFEAT ALS

Over 160 teams joined together at the Walks to Defeat ALS, raising $540,000 to support Chapter programs

We need to continue the fight until there is a cure...as long as I am able I am going to keep up the fight. Please join me.

IN MEMORY

Honoring those we have lost

1.1.2019 to 12.31.2019

2019 COMMUNITY & WALK TO DEFEAT ALS SPONSORS

All Ways Caring HomeCare | Ash Creek Enterprises | Buckley, Wynne, Parese | Bullock Access | RSM | Savory Concepts | Sterling Care Home Health Care | Teamster Local 1150

PROGRAM PARTNERS

Bullock Access

Coordinated Transportation Solutions

Hospital Bed Project

Lifeway Mobility

Mobility Works

NuMotion

On the Mend Medical Equipment

Oak Hill/NEAT Marketplace

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